Go Big. Go Bright. Go Bold.
Do something rare with your hair on Feb 28!
Sign up to do something rare with your hair on Febru-hairy 28 and you can make a difference to the millions of overlooked Aussies facing debilitating and deadly rare disease.
Around 8% of all Aussies live with a disease that is considered rare – that’s two million people.
Why rare disease sucks
They're mean
Rare diseases are usually chronically debilitating and can be life-threatening.
They suck even more because 80% are genetic, devastating entire families.
They pick on kids
We don't want to have to tell you this but 30% of children diagnosed with a rare disease will die before they reach age 5.
1 in 12 babies will be diagnosed with a rare disease.
They're sneaky
Lack of research and knowledge means rare diseases are hard to spot by even the best medical professionals.
On average, people see 5 doctors, wait 4 years and receive 3 misdiagnoses before they get answers.
And worst of all, they’re getting away with it because 95% of rare diseases don't have a safe or accessible treatment.
That's why we really need your help.
your mission: Bad Hair for A GOOD CAUSE
You'll rock bad hair for a good cause on Feb 28 to make an incredible difference to the millions of Aussies impacted by debilitating and deadly rare disease who are too often overlooked.
1. Sign up
Register yourself or your child today for free and set up your fundraising page in a matter of minutes.
2. Get sponsored
Ask your mates to sponsor you for your bravery. Most people can afford to chuck you a fiver - if you're hardcore, ask for more!
3. Do something rare with your hair
You can rock a mohawk, dig a wig or spray a rainbow, on February 28th in celebration of Rare Disease Day.
(Beards welcome too!)
So far we've raised
$4,728
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